Edward’s Story Meet 14-year-old Edward! Edward is a keen sportsman and enjoys playing rugby and football outside of school. Edward loves acting, having performed in Cheshire Youth Pantomime Society’s Pantomimes Snow White and the Seven Dwarfs in 2019 and Aladdin in 2020. Edward was diagnosed with Crohn’s Disease in March 2019. Crohn's disease is a [...]
Nathaniel’s Story: Meet 10-year-old Nathaniel! Nathaniel enjoys playing football, computer games, board games and riding his bike. Nathaniel was born with a critical congenital heart defect called Aortic Arch Hypoplasia Coarctation. This occurs when the Aorta is narrower than usual and if not diagnosed can cause serious problems. He had to have open heart surgery [...]
Harry’s Story Meet 9-year-old Harry! He loves Manchester City FC and his favourite player is Bernardo Silva. He also enjoys Lego, XBOX and spending time with his family. Harry is diagnosed with Duchenne Muscular Dystrophy which is a muscle wasting condition. His condition is degenerative, and he will eventually stop walking and using his upper [...]
Barrie is absolutely delighted to be recognised as a Fan of the Decade by Liverpool FC and Standard Chartered, who celebrate their 10 year partnership this year. He was nominated for this award, not only for being a lifelong Liverpool FC supporter, but for all his work and dedication to Box4Kids which started at Anfield [...]
Owen’s Story Meet 12-year-old Owen! Owen is diagnosed with 22q deletion syndrome (also known as DiGeorge Syndrome) which limits his life expectancy. 22q deletion is caused by the deletion of a small segment of chromosome 22 and can cause a range of problems, including heart defects and learning difficulties. Owen’s main health problem is his [...]
Matty’s Story Meet 15-year-old Matthew (who likes to be known as Matty)! In December 2016 Matty was diagnosed with medulloblastoma which is a malignant, embryonal brain tumour. Around 55 children are diagnosed with medulloblastoma each year in the UK. He underwent treatment which involved tumour removal, radiotherapy and 12 months of chemotherapy. Unfortunately, he relapsed [...]
Rocky’s Story Meet 10-year-old Rocky! Rocky loves anything to do with sport especially football, athletics, Formula One and horse racing. You name a sport, Rocky loves it! He also enjoys anything energetic and music! When Rocky was just one year old, he was diagnosed with Ketotic Hypoglycaemia, which is a condition where the level of [...]
Katie’s Story Meet 16-year-old Katie! Katie has a condition called Postprandial hyperinsulinemia hypoglycaemia which is a condition where her body does not know when to switch off its own insulin supply and does not metabolise any foods so Katie has to eat every two hours. Katie has been attending Great Ormond Street Hospital since she [...]