Owen’s Story Meet 12-year-old Owen! Owen is diagnosed with 22q deletion syndrome (also known as DiGeorge Syndrome) which limits his life expectancy. 22q deletion is caused by the deletion of a small segment of chromosome 22 and can cause a range of problems, including heart defects and learning difficulties. Owen’s main health problem is his [...]
Matty’s Story Meet 15-year-old Matthew (who likes to be known as Matty)! In December 2016 Matty was diagnosed with medulloblastoma which is a malignant, embryonal brain tumour. Around 55 children are diagnosed with medulloblastoma each year in the UK. He underwent treatment which involved tumour removal, radiotherapy and 12 months of chemotherapy. Unfortunately, he relapsed [...]
Rocky’s Story Meet 10-year-old Rocky! Rocky loves anything to do with sport especially football, athletics, Formula One and horse racing. You name a sport, Rocky loves it! He also enjoys anything energetic and music! When Rocky was just one year old, he was diagnosed with Ketotic Hypoglycaemia, which is a condition where the level of [...]
Katie’s Story Meet 16-year-old Katie! Katie has a condition called Postprandial hyperinsulinemia hypoglycaemia which is a condition where her body does not know when to switch off its own insulin supply and does not metabolise any foods so Katie has to eat every two hours. Katie has been attending Great Ormond Street Hospital since she [...]
Tom’s Story Meet 14-year-old Tom! He loves all sports and played a lot before his diagnosis. In November 2018 Tom was diagnosed with a brain tumour. It came as a real shock as he had not had any particular symptoms. He had actually attended hospital for a CT scan to investigate a headache linked to [...]
Ben’s Story Meet 12-year-old Ben! He has a great variety of interests including Manchester United, Marvel, DC Comics, gaming with friends, films and more recently baking and music. Ben was born poorly and as time as progressed, he and his family have learned to live with his chronic illnesses. He suffers from a number of [...]
Maisy’s Story Meet 11-year-old Maisy! Maisy was a normal girl who loved life, cart-wheeled everywhere she went and loved being with her friends. In April 2019 Maisy, aged 10 was diagnosed with stage four Germ Cell (Ovarian) Cancer which had also spread to her liver and lungs. She was immediately transferred to Alder Hey Children’s [...]
James’ Story Meet nine-year-old James! James was diagnosed with acute lymphoblastic leukaemia when he was just two years old and went through three and a half years of very intense chemotherapy. James absolutely loves football! He is a big Liverpool FC fan and enjoys watching local team Coventry City play. James also adores Star Wars [...]